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22q11.2 Deletion Syndrome – Lifestyle Changes and Self-Help

Lifestyle changes and self-help for 22q11.2 deletion syndrome - Although learning disability is a major limitation of 22q11.2 deletion syndrome, yet your child can develop intellectual abilities to a certain extent. As a parent, you are strength and support for your child.

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Lifestyle Changes and Self-Help for 22q11.2 Deletion Syndrome

New York (USA), June 16, 2013

Lifestyle Changes for 22q11.2 Deletion Syndrome

There are no specific guidelines on how to manage independently with 22q11.2 deletion syndrome. Experts offer varied advices on every condition. You can choose whatever suits you best.

In the earliest stages, soon after birth and thereafter, evaluate your child regularly with your pediatrician. Local agencies organize early intervention programs to cope with such problems in your child. Secure regular assessments of your child’s condition. As your child grows, adopt individualized education program according to your child’s abilities.

Although learning disability is a major limitation of 22q11.2 deletion syndrome, yet your child can develop intellectual abilities to a certain extent. Normally inability to think, plan, focus, or execute simple chores affects children and reflects on their life as they grow up. These mostly translate into anxiety and psychiatric disorders.

Self-Help for 22q11.2 Deletion Syndrome

Although programs and therapy sessions are useful, your emotional support goes a long way in stabilizing your child. Simple emotions of love, kindness, and enthusiasm mould your child more securely. Persistence and patience play key roles, although it could be pretty challenging for you. As a parent, you are the pillar of strength and support for your child.

Also, check with your medical geneticist if your child has inherited this syndrome due to family mutation or developed it as a new mutation. Genetic counseling in pre-natal period is essential to understand existing condition, reproductive options, and chances of recurrence.

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